” Global Developmental Delay (GDD) is a general term used to describe a condition that occurs during the developmental period of a child between birth and 18 years. It is usually defined by the child being diagnosed with having a lower intellectual functioning than what is perceived as ‘normal'”.
Well being told your child has this is a bit of a kick in the gut don’t you think….
River is two years and a few months old now and he was diagnosed with GDD at around the 18 month mark as he was very slow at reaching all his milestones.However River also has lots of other medical needs and has spent a lot of time in hospital in his little life.
GDD can effect all areas including physical, cognitive, communication, social and emotional. River is delayed in all these areas.
I personally feel children are given the diagnoses of GDD when no one actually knows why their child is delayed. We have been told on many occasions they believe this may be a syndrome or a genetic disorder however there are so many different types out there and new genetic disorders discovered all the time we may never actually know why River is the way he is, but we have to just work with him and give him the support he needs, this is all well and good but I would still like to actually know the why!
A lot of people don’t understand the frustration I and many others must have to watch your child not develop like other children their age, and to see the frustration in your child’s eyes as they just can’t do the same as them. It hurts me as a parent to watch other two years olds shouting and running around and actually understanding you, when River just does not. Don’t get me wrong I’m so proud of River as he has done amazing and is progressing…it’s just at River’s pace.
I hear other people’s stories and hear of their battles they face on a daily basis to try and get their child the correct support as our children only have us to fight those battles for them we are their advocate and in many cases we are their voice so we have to be strong and stand up for what we believe is right. I no we are only at the beginning of our battle but I’m ready – I’m ready to support River through his life and to be his voice for as long as he needs it.
Being diagnosed with GDD does not mean you’re stupid it means somewhere, somehow along the way you struggled and you may never no why however there is a reason for it, it may just not have a name yet. I believe all children deserve a chance no matter what their disability – it just makes them all a little bit more special just like my little River.