Global Developmental Delay: The Emotions

” Global Developmental Delay (GDD) is a general term used to describe a condition that occurs during the developmental period of a child between birth and 18 years. It is usually defined by the child being diagnosed with having a lower intellectual functioning than what is perceived as ‘normal'”.

Well being told your child has this is a bit of a kick in the gut don’t you think….

River is two years and a few months old now and he was diagnosed with GDD at around the 18 month mark as he was very slow at reaching all his milestones.However River also has lots of other medical needs and has spent a lot of time in hospital in his little life.

GDD can effect all areas including physical, cognitive, communication, social and emotional. River is delayed in all these areas.

I personally feel children are given the diagnoses of GDD when no one actually knows why their child is delayed. We have been told on many occasions they believe this may be a syndrome or a genetic disorder however there are so many different types out there and new genetic disorders discovered all the time we may never actually know why River is the way he is, but we have to just work with him and give him the support he needs, this is all well and good but I would still like to actually know the why!

A lot of people don’t understand the frustration I and many others must have to watch your child not develop like other children their age, and to see the frustration in your child’s eyes as they just can’t do the same as them. It hurts me as a parent to watch other two years olds shouting and running around and actually understanding you, when River just does not. Don’t  get me wrong I’m so proud of River as he has done amazing and is progressing…it’s just at River’s pace.

I hear other people’s stories and hear of their battles they face on a daily basis to try and get their child the correct support as our children only have us to fight those battles for them we are their advocate and in many cases we are their voice so we have to be strong and stand up for what we believe is right. I no we are only at the beginning of our battle but I’m ready – I’m ready to support River through his life and to be his voice for as long as he needs it.

Being diagnosed with GDD does not mean you’re stupid it means somewhere, somehow along the way you struggled and you may never no why however there is a reason for it, it may just not have a name yet. I believe all children deserve a chance no matter what their disability – it just makes them all a little bit more special just like my little River.

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14 thoughts on “Global Developmental Delay: The Emotions

  1. Rainbows are too beautiful says:

    I know a few parents with either very rare or undiagnosed syndromes. All my kids conditions have well known labels and this has not doubt made them easier to help an understand. But at the heart of it, each child is a beautiful individual and it sounds like you are set to help River in whatever way is needed. Thanks for sharing. #mainyloveschristmas

    Liked by 1 person

  2. farmerswifeandmummy says:

    Oh it is so hard. We know why but it doesn’t make it any easier and it is heartbreaking when you see their peers overtaking them. I just try to remind myself about how well she has done and is doing. Today was a bad day but there are so many good. You are not alone xx

    Liked by 1 person

  3. Upside Mum says:

    My eldest was diagnosed with GDD by paediatrician when he was between 12-18 months. A later assessment also diagnosed autism when he was just over 3 but stated that he also had a wider global developmental delay. I agree with you about them just not knowing and it being catch-all label. My son saw a geneticist many times but I think they were clutching at straws. It’s great that you’re aware and you are ready to be your son’s advocate. Things shouldn’t be a fight but they are and you will find a strength you never knew you had! This list really rang true with me, thank you for writing it. Sometimes it helps to know you are not alone x

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  4. Leanne says:

    Our 3.5 year old son Owen has GDD, it got diagnosed when he was 18 months old. It hurt, especially since my sister had a child the same age as our son. So we had a constant reminder of what he should be doing versus what Owen was doing. I cried after most family occasions as it made me feel so sad to see my niece achieve things I so desperately wanted for Owen to do.
    I’ve heard the gap just worsens as GDD children get older and this makes the constant sorrow and sadness I go through now even more unbearable.
    Owen will be going to mainstream kindy this year as well as a speech and language kindy one day a week. We are hoping to see an improvement with his speech as he does talk but it’s not very clear.
    We have now found out the reason for Owens GDD which is a rare chromosome disease, it still doesn’t give us answers as children with this are all affected differently so we still live with the constant unknown of what Owen will be like as an adult.

    Liked by 1 person

  5. Suzanne Eaton says:

    No diagnosis will any difference to our daughters future, she is now 28, in terms of the physical care and support she needs, but it doesn’t stop the professionals from looking for a label to attach to her, she has been given the label SWAN, syndrome without a name, which we don’t find helpful at all. We have another child who is dyslexic, dysgraphic and discalulus and 3 other boys who don’t have learning or physical difficulties and we were were very unsure of their futures in regards to education and work, we never had a plan for them, they just all became who they were in their own time, although the dyslexic diagnosis has helped our youngest get through school, but that was something that was tested and had fixed yes or no to it. #SpectrumSunday

    Liked by 1 person

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